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Guidelines for Ensuring Access to Care and Treatment for Rare Disease Patients

Global Genes and Child Neurology Foundation Outline “Guiding Principles of Rare Disease Care and Patient Access” in Joint Report, Urging Health System Stakeholders to Help…

National Academies of Medicine releases draft of proposed guidelines for COVID-19 vaccine, seeking public feedback

On Tuesday, September 1, the National Academies of Medicine (NAM) released a draft of their proposed guidelines for the distribution of a potential COVID-19 vaccine once it becomes available.  The public has been…

The Cute Syndrome Foundation – Book Club

Here are some highlights of the book club supported by the RISING Tides grant, with details and photographs provided by the Cute Syndrome Foundation.

COVID-19 Stories

A selection of stories from families in our community during the pandemic.

Child Neurology Foundation CEO Amy Brin To Lead Epilepsy Leadership Council’s New Steering Committee

The Child Neurology Foundation is pleased to announce that CEO and Executive Director Amy Brin is furthering her commitment to the pediatric neurology community and…

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