Welcome to the Transitions of Care Hub where we share tools, resources and information about our inaugural summit which was held June 15th-24th.
Missed a live session? Don’t worry, the recordings from each session are here to watch!
We also have three re-recorded panels from the summit which will be posted below.
Missed A Live Session? Catch It Here
Advocating for Equitable Environments and Policies for Children and Young Adults with Neurologic Conditions
Recorded June 15, 2021
Please let us know your thoughts and comments about this panel in our survey.
How Increasing Access in Transitions of Care Benefits All of Us
Recorded June 16, 2021
We’d love to hear your thoughts about this panel. Please let us know in the feedback form linked below!
Using Social Media to Build Community and Advocate for Better Care as a Young Adult
Recorded June 17, 2021
Share your thoughts and comments about this panel below. We appreciate the feedback and use it help inform future events.
Racism, Discrimination, and other Adverse Childhood Events (ACEs) and Their Long-Term Effects on Health Outcomes and Care
Recorded June 21, 2021
Do you have comments about this panel? What would you like to see in future events? Let us know in the survey linked below.
Dating While Rare: Finding Love on the Other Side of Transition
Recorded June 22, 2021
What did you like in about this panel? Did you learn something new? What could be better? Leave us a comment and let us know!
Long-Distance Caregiving for Young Adults with Disabilities: Future Planning for Siblings from Afar
Recorded June 23, 2021
We appreciate all feedback and comments. Please let us know if you found this session helpful or what you’d like to see next time!
Kids Get MS, Too: Better Understanding of Diseases Processes in Children for Improved Adult Neurologic Care
Recorded June 24, 2021
We’d love to hear from you! Let us know your thoughts about this panel by leaving us a comment in the feedback survey below.
Why Should I Care What My Doctor is Getting Paid?: How Advocating for Reimbursement for Clinicians Can Improve Patient Care
Transition Of Care Tools
- Education Transition For Youth With Neurological Conditions – a new step-by-step guide and an accompanying self-paced training curriculum
- Stay A Step Ahead: Prepare For The Future Of Your Epilepsy Care
- Seizure Assistance Dogs: What You Need To Know
- TSC Alliance 2021 Transition Workshop Series