Transitions of Care Hub - Child Neurology Foundation

Welcome to the Transitions of Care Hub where we share tools, resources and information about our inaugural summit which was held June 15th-24th.

Missed a live session? Don’t worry, the recordings from each session are here to watch!

We also have three re-recorded panels from the summit which will be posted below.

Missed A Live Session? Catch It Here

Advocating for Equitable Environments and Policies for Children and Young Adults with Neurologic Conditions
Recorded June 15, 2021

Please let us know your thoughts and comments about this panel in our survey.

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How Increasing Access in Transitions of Care Benefits All of Us

Recorded June 16, 2021

We’d love to hear your thoughts about this panel. Please let us know in the feedback form linked below!

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Using Social Media to Build Community and Advocate for Better Care as a Young Adult

Recorded June 17, 2021

Share your thoughts and comments about this panel below. We appreciate the feedback and use it help inform future events.

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Racism, Discrimination, and other Adverse Childhood Events (ACEs) and Their Long-Term Effects on Health Outcomes and Care
Recorded June 21, 2021

Do you have comments about this panel? What would you like to see in future events? Let us know in the survey linked below.

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Dating While Rare: Finding Love on the Other Side of Transition

Recorded June 22, 2021

What did you like in about this panel? Did you learn something new? What could be better? Leave us a comment and let us know!

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Long-Distance Caregiving for Young Adults with Disabilities: Future Planning for Siblings from Afar
Recorded June 23, 2021

We appreciate all feedback and comments. Please let us know if you found this session helpful or what you’d like to see next time!

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Kids Get MS, Too: Better Understanding of Diseases Processes in Children for Improved Adult Neurologic Care
Recorded June 24, 2021

We’d love to hear from you! Let us know your thoughts about this panel by leaving us a comment in the feedback survey below.

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Pre-Recorded Sessions

The Power of Storytelling: Advocating for Better Care as a Non-Verbal Young Adult

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How Can Telehealth Improve My Transition to Adult Care?

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Why Should I Care What My Doctor is Getting Paid?: How Advocating for Reimbursement for Clinicians Can Improve Patient Care

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Transition Of Care Tools

Other Resources:

Education Transition For Youth With Neurological Conditions – a new step-by-step guide and an accompanying self-paced training curriculum
Stay A Step Ahead: Prepare For The Future Of Your Epilepsy Care
Seizure Assistance Dogs: What You Need To Know
TSC Alliance 2021 Transition Workshop Series

Need To Get In Touch?

Or connect with us on social media:

@CNFoundation

@Child_Neurology

@childneurologyfoundation

Missed A Live Session? Catch It Here

Advocating for Equitable Environments and Policies for Children and Young Adults with Neurologic Conditions
Recorded June 15, 2021

How Increasing Access in Transitions of Care Benefits All of Us

Recorded June 16, 2021

Using Social Media to Build Community and Advocate for Better Care as a Young Adult

Recorded June 17, 2021

Racism, Discrimination, and other Adverse Childhood Events (ACEs) and Their Long-Term Effects on Health Outcomes and Care
Recorded June 21, 2021

Dating While Rare: Finding Love on the Other Side of Transition

Recorded June 22, 2021

Long-Distance Caregiving for Young Adults with Disabilities: Future Planning for Siblings from Afar
Recorded June 23, 2021

Kids Get MS, Too: Better Understanding of Diseases Processes in Children for Improved Adult Neurologic Care
Recorded June 24, 2021

Pre-Recorded Sessions

The Power of Storytelling: Advocating for Better Care as a Non-Verbal Young Adult

How Can Telehealth Improve My Transition to Adult Care?

Why Should I Care What My Doctor is Getting Paid?: How Advocating for Reimbursement for Clinicians Can Improve Patient Care

Transition Of Care Tools

Transition of Care Video Series

What is the Transitions Project Advisory Committee?

Resources for Young People with Neurologic Conditions and their Caregivers

Resources for Providers

Need To Get In Touch?

Big thank you to our 2021 partners in Transitions of Care: Acadia, Biogen, Eisai, Genentech, Greenwich Biosciences and Zogenix.

Policy & Information

Missed A Live Session? Catch It Here

Advocating for Equitable Environments and Policies for Children and Young Adults with Neurologic Conditions Recorded June 15, 2021

How Increasing Access in Transitions of Care Benefits All of Us

Recorded June 16, 2021

Using Social Media to Build Community and Advocate for Better Care as a Young Adult Recorded June 17, 2021

Racism, Discrimination, and other Adverse Childhood Events (ACEs) and Their Long-Term Effects on Health Outcomes and Care Recorded June 21, 2021

Dating While Rare: Finding Love on the Other Side of Transition

Recorded June 22, 2021

Long-Distance Caregiving for Young Adults with Disabilities: Future Planning for Siblings from Afar Recorded June 23, 2021

Kids Get MS, Too: Better Understanding of Diseases Processes in Children for Improved Adult Neurologic Care Recorded June 24, 2021

Pre-Recorded Sessions

The Power of Storytelling: Advocating for Better Care as a Non-Verbal Young Adult

How Can Telehealth Improve My Transition to Adult Care?

Why Should I Care What My Doctor is Getting Paid?: How Advocating for Reimbursement for Clinicians Can Improve Patient Care

Transition Of Care Tools

Transition of Care Video Series

What is the Transitions Project Advisory Committee?

Resources for Young People with Neurologic Conditions and their Caregivers

Resources for Providers

Need To Get In Touch?

Big thank you to our 2021 partners in Transitions of Care: Acadia, Biogen, Eisai, Genentech, Greenwich Biosciences and Zogenix.

Advocating for Equitable Environments and Policies for Children and Young Adults with Neurologic Conditions
Recorded June 15, 2021

Using Social Media to Build Community and Advocate for Better Care as a Young Adult

Recorded June 17, 2021

Racism, Discrimination, and other Adverse Childhood Events (ACEs) and Their Long-Term Effects on Health Outcomes and Care
Recorded June 21, 2021

Long-Distance Caregiving for Young Adults with Disabilities: Future Planning for Siblings from Afar
Recorded June 23, 2021

Kids Get MS, Too: Better Understanding of Diseases Processes in Children for Improved Adult Neurologic Care
Recorded June 24, 2021