CNF’s Community of Practice gathering is a way to provide a safe forum for people in our sector to support one another, connecting about our…
Luke really needed the social interaction, and since we started two weeks ago, the light is coming back into his eyes.
Mia is 3 years old and has a rare form of epilepsy, SCN8A, that causes developmental delays and other problems as well.
He has a smile that lights up a room, he loves people, and he’s also a typical rowdy boy.Â
Auggie is trained to alert to oncoming seizures, a job she takes very seriously. Auggie keeps our daughter safe, and affords her a level of…
We feel so blessed to have her in our lives. The joy that pours out of her is contagious.
We regret to announce the death of Kenneth Swaiman, MD, the founder and first president of the Child Neurology Society, Child Neurology Foundation, and the…
“While COVID-19 may bring parts of our world and lives to a halt, KIF1A will not stop robbing children of their ability to walk, talk,…
“With schools being closed, any interaction Ethan can get is vital.”
A list of diseases and conditions sourced through CNF’s partnership with The National Institute of Neurological Disorders and Stroke (NINDS), US National Institutes of Health.
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