If your child or a child you care for has the symptoms of a neurologic disorder — or have recently received a diagnosis — we want you to know that you are not alone. One in six children is living with a neurologic diagnosis. CNF has developed information for patients, caregivers, and families to accompany you on the path from the onset of symptoms, to seeking and receiving a diagnosis, to choosing treatment options, and finding the support that you and your family need and deserve!
Introducing: Family Support and Empowerment Program
The CNF Family Support and Empowerment Program (FSEP) offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition.
Along with offering relational support, CNF Peer Support Specialists seek to empower families by sharing sound information and helpful resources. Each Peer Support Specialist receives comprehensive training about the needs of the child neurology community and ongoing mentorship as they start connecting with families.
If you’re a parent, receiving a diagnosis for your child that is life-changing will shake you to your core. Having a safe place to explore feelings of “this is not the way it’s supposed to be” is what FSEP is all about. Sharing the emotional process that often comes with a new diagnosis or living with a neurologic condition, with someone who has also experienced these feelings, can be helpful to many families. FSEP’s Peer Support Specialists are trained to listen to you along this emotional journey without judgment. In addition, you will be provided with accessible resources from CNF and/or our trusted partners.
FSEP was created so that no parent or caregiver in the child neurology community ever walks alone:
“We would be humbled and honored to walk with you on your journey.”
If you are looking for a neurologist, our partners at the American Academy of Neurology (AAN) have a helpful “Find a Neurologist” tool that enables you to search for a neurologist by specialty, last name, city, or state. To find a neurologist who sees children and teens, select “Child Neurology” from the list under “Subspecialty.”
Please note: Peer Support Specialists are not medical providers. Support from FSEP is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your neurologist, physician, or other qualified health provider with any questions about or related to a medical condition. CNF assumes no responsibility for any injury arising out of or related to any use of FSEP and related information or for any errors or omissions.